May 31, 2004
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(2000-2003) CLL Information
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Cancer Care Alliance MD
Anderson
Always giving thanks to God the Father for everything, in the name
or our Lord Jesus Christ. Ephesians 5:20
Memorial day for me began with an early visit to the clinic for additional
blood chemistries and additional follow up on my irritated stomach. My chemistries
showed my sodium levels still remain low, so I have been given salt tablets
to take four times a day to help maintain proper sodium levels. My Magnesium
was down also, so pharmacy sent me home with a 100mL infusion bag of Mg solution,
which I infused via my portable home pump. Nice to be able to do the infusion
at home versus the clinic. I have increased the frequency of dosage of my
anti-nausea/vomiting drug Ativan, which seems to be helping calm the stomach.
However, I will most likely see a GI specialist to examine my stomach sometime
this week. Please be praying for this. Good signs regarding my stomach are
that I haven't had any more diarrhea and I haven't vomited. In addition, I
am eating very well, which is a major positive. Besides my stomach, my main
battle lately continues to be fatigue. I worked out for a short while in the
apartment gym, but my energy level forces me to take it pretty easy. It is
absolutely amazing how tired a person can feel.
Though yesterday didn't work out
to be with my family, Michelle and the boys came up today. I can't even begin
to describe how wonderful it was to be together. I miss them and love them
so much. Our time together was such a blessing. I only wish the time could
have been longer. Having had the chance to be together today was really what
I needed. Thank you Lord for giving us this time together-what a gift. Michelle
and the older two boys had to head back a little early because CJ had basketball
practice, but Tanner stayed behind for a few extra hours and we watched a
movie together, went on the roof to see the city, and spent time just being
together.
Later in the evening our good friend Gary came by and picked up Tanner to
take him along with our other boys, his daughter and her friend, and another
neighbor friend to the Mariner's Game. It was so nice of Gary to take all
those kids to the ballgame. Thanks Gary-you're awesome. I can't thank you
enough for what you and your family does to support our family. We are so
grateful for all your kindness and friendship.
In closing, I just want to say thank you again to the Lord for this day and
the chance to be with my family. I also submit requests for prayer on this
upcoming week. In addition to potential GI testing for my stomach, I will
have an important bone marrow test on Wednesday to check the progress of my
transplant so far. The doctor's will discuss these results with me on Thursday.
Please keep these things in your prayers.
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